Leukemia treatment adds another layer to your life that demands your time and energy, and sometimes your money. It does not ask permission to take over and usually moves itself to top priority whenever it intervenes.
I got tangled up in the line to my infusion pump and managed to pull the quick-disconnect loose at 2230 last night. Imagine the quick-disconnects they have on gas pump handles at the top of the gas pumps.
BUMC has an after-hours just for oncology peeps. Trip down there and got home at 0200. (Think IV needle in chest port and about a 4' IV line to the portable infusion pump I've been carrying at my waist.
Long story short, not their finest hour. Nobody was there that could properly reconnect and restart the infusion pump. Between what the nurses have certifications for (think chemo handling protocol) to potential contamination when the connection busted and then someone with the know-how and authority to restart the flow of a powerful drug that you can't risk overdosing on.
So, waiting to hear back this morning that there's someone there that can actually do the job.
Time: So my schedule is not my own this morning. I am at the mercy of those at BUMC to sort out and figure out the next step. Time spent last night and most likely today shuttling downtown and waiting.
Energy: Draining and frustrating as I can't start any "project" today until this gets sorted out.
Money: 2 round trips of travel costs to downtown and back. Whatever they end up charging me for breaking the pump connection/reconnect.
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