Tuesday, August 26, 2025

Aug 26: One Day at a Time

It has been a one day at a time journey since I got released from the hospital a month ago. 

Tough. 

I just now feel like I'm starting to climb out of the hole. Sometime this coming week, I'll get kicked back into the hole with a 3 day round of chemo for CAR-T. Hopefully the last cheno I'll ever have to experience again in this lifetime. 2 more rounds of dry heaves this morning to top it off. Hopefully, no more today. 

Please pray that CAR-T would be effective and successful. 

Grace be upon you all today. 

Friday, August 1, 2025

Aug 1: At home - yea!

 Tough ten days to get to here. Was all about the immune system recovery. An IV Antibody doesn't replace what the body does in the immune system. 

What are the types of white blood cells?

There are five types of white blood cells:

  • Neutrophils: Help protect your body from infections by killing bacteria, fungi and foreign debris.
  • Lymphocytes: Consist of T cells, natural killer cells and B cells to protect against viral infections and produce proteins to help you fight infection (antibodies).
  • Eosinophils: Identify and destroy parasites, cancer cells and assists basophils with your allergic response.
  • Basophils: Produce an allergic response like coughing, sneezing or a runny nose.
  • Monocytes: Defend against infection by cleaning up damaged cells.++

The last 12" is the toughest and most critical for "going" comfort. When my white cells jumped up to half normal, I started healing that last part of the GI Tract. 

Sunday, July 20, 2025

Jul 20 - A Very Hard Journey

 This journey, it's hard. Very hard. 

Constantly tied to an IV pole. Cycles of pain from 4 to 9, living a lot in the 7 and 8 zone. Asking God for healing and relief, Body functions not working used to having to manage Constipation and even at the best, still very painful movements. Living in the confusion of pain meds that  ,   clouds you're thinking makes it hard to have cohesive thoughts.

Living an exposed life, No privacy no modesty. Wanting to just be kind of normal again,

Really gives me pause for thought. Thinking about Martyrs in Nigeria and other places today and what they go through standing for their faith. I'm not standing for my faith. I'm just enduring pain. They face tough choices,

Blessings to you today.

Wednesday, July 9, 2025

Jul 9: The Dark Nights

 It has been a dark night of the soul this week.

My mouth pain (a sore at the base of my tongue) and "exit" pain at the other end of my GI tract has 3 and a 9.5 on the 10-point pain scale. The pain is grinding. Started losing my hair on Monday. My whole face is basically almost like a bad sunburn. Sleep at best has been fretful, even with Oxycodone. 

How do I deal with this pain? I see no end in sight. 

For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. Romans 8:18

... not only the creation, but we ourselves, who have the first fruits of the Spirit, groan inwardly as we wait eagerly for adoption as sons, the redemption of our bodies. Romans 8:23

Jesus is there with me. He suffered as man suffered, physically, emotionally, mentally and spiritually. Gentle and lowly is He who loves us and shows us mercy & grace wrapped up in His complete love. 

I hurt, but do not lose hope.

His grace be upon you all today, for He is God!

Gary

Monday, June 30, 2025

June 30: A Boost and the Warburg View

Today should be my go home day. They are planning to give me a stem cell donor boost of my cells that were held back from the original transplant. Hopefully, no complications or side effects. I didn't have any the first time. 

My "new" Metabolic Approach to Leukemia. There are 2 overarching views of cancer. Mutagenic (genetic problem) and Metabolic (energy pathways). I believe it's probably a mix of both. The metabolic view is you can "starve" cancer. 

  • Regular, intermittent fasting
  • Keto. I don't think long-term ketogenesis is in my future. It's such an extreme, but I can get closer. 
  • No Sugar, glucose, No simple carbs
  • No alcohol
  • Starve it, don’t feed it.
  • Some is better than none. NO all or nothing thinking.
  • Alkaline “stasis”
  • Warburg view

Foods to REDUCE

  • sugary foods: soda, fruit juice, smoothies, cake, ice cream, candy, etc.
  • grains or starches: wheat-based products, rice, pasta, cereal, etc.
  • fruit: all fruit, except small portions of berries like strawberries
  • beans or legumes: peas, kidney beans, lentils, chickpeas, etc.
  • root vegetables and tubers: potatoes, sweet potatoes, carrots, parsnips, etc.
  • alcohol: beer, wine, liquor, mixed drinks
  • low fat or diet products: low fat mayonnaise, salad dressings, and condiments
  • Sweet condiments or sauces: barbecue sauce, honey mustard, teriyaki sauce, ketchup, etc.
  • unhealthy fats: processed vegetable oils, mayonnaise, etc.
  • sugar-free diet foods: sugar-free candies, syrups, puddings, sweeteners, desserts, etc
God is my grace. Jesus is my firm foundation. He calls me to be in His presence, at peace, without shame. I am His, and He is mine.

Wednesday, June 25, 2025

June 25: Paradigm Shifts

Thursday: Living at home, rummage the fridge for meals, usual breakfast choices, lunch choices, ponder projects - how to fix the lack of insulation in front office bedroom, one more beam to treat in the gazebo with wood treatment, Walmart/Aldi run, harvesting the last of the Swiss chard, evening TV streaming distractions with the wife. 

Saturday: Hospital room, no kitchen, living with nice strangers who get you ice water, take your vitals and try to be nice about waking you up at 4a to draw blood, walking EVERYWHERE with the IV pole, including the shower, gearing up to shower (covering the port/IV mess), what you have is now what you carried in your carry-on suitcase and backpack, new conversations about Jesus, lots of time to reconnect with none of the home distractions, living in the moment. Isolated, but not. 



Tuesday, June 24, 2025

Jun 24: Tue not Sat

Boy, talk about scrambled up days. I woke up this morning and could have sworn it was Saturday. G

Going back into Pickens was not easy yesterday, despite God making the way smooth as possible. I was feeling depressed. Check-in was 5-star and I didn't have to wait for my room on the 6th floor. Staff is still as great as ever. Food is still hospital. God opened my eyes to His goodness.

Gracious rest and sleep last night despite waking up in a soup bowl of night sweats. Started chemo last night. My numbers had inched up to 92 yesterday. 

So many blessings since checking in. Encouraging conversations with brothers and sisters in Jesus. Prayers given and received. 

There really are 2 lenses to look at this world through. Hard to look through them both. We either look at them through God's eternal, loving lens, or our own corrupted-world distorted lens. 

It says this in Romans 1:

God’s way of putting people right shows up in the acts of faith, confirming what Scripture has said all along: “The person in right standing before God by trusting him really lives.”

But God’s angry displeasure erupts as acts of human mistrust and wrongdoing and lying accumulate, as people try to put a shroud over truth. But the basic reality of God is plain enough. Open your eyes and there it is! By taking a long and thoughtful look at what God has created, people have always been able to see what their eyes as such can’t see: eternal power, for instance, and the mystery of his divine being. So nobody has a good excuse. What happened was this: People knew God perfectly well, but when they didn’t treat him like God, refusing to worship him, they trivialized themselves into silliness and confusion so that there was neither sense nor direction left in their lives. They pretended to know it all, but were illiterate regarding life. They traded the glory of God who holds the whole world in his hands for cheap figurines you can buy at any roadside stand.

So God said, in effect, “If that’s what you want, that’s what you get.”

++++++++++

Are you getting the best of God or the "best" of your own world? 

God bless you all in the peace of His grace today.



Jun 20, 2026: Plan D?

For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last foreve...